Duchenne Family Support Group

DMD is a genetic disorder which affects boys and can be “carried” by some healthy female relatives.The DMD gene is damaged so an important protein called dystrophin is missing. Young boys appear healthy but the muscles gradually weaken as they grow. The heart and breathing muscles can also be affected when older.

It used to affect only children and teenagers but nowadays, with better management, an increasing proportion of young people enjoy adult life and we should encourage them (from a young age) to achieve their goals in education, employment, independent living, leisure and relationships. The Muscular Dystrophy Campaign (MDC) has booklets written for boys with DMD.

Show Buttons
Hide Buttons